Myotonic Dystrophy Quotes

I haven't been able to pray with the same unquestioned simplicity of hope since Dustin passed. My childhood ended the day my brother died. The naive hope that a miracle would save him, that he would one day walk, that a disease was a blessing in my family – that hope died with him. ~ Darcy Leech

Her words felt like a new beginning, a turning of a page, and, ominously, rang like the beginning of a final chapter. ~ Darcy Leech

My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy. ~ Mattie Stepanek

People need to remember that to balance the federal budget off the backs of the poorest people in the country is simply unacceptable. You don't pull feeding tubes from people. You don't pull the wheelchair out from under the child with muscular dystrophy. ~ Mike Huckabee

Muscular dystrophy ... was never seen until Duchenne described it in the 1850s. By 1860, after his original description, many hundreds of cases had been recognised and described, so much so that Charcot said: 'How is it that a disease so common, so widespread, and so recognisable at a glance - a disease which has doubtless always existed - how is it that it is recognised only now? Why did we need M. Duchenne to open our eyes?' ~ Oliver Sacks

If I found the cure for dystrophy tomorrow, I would do a telethon in four weeks for acute pain that in this country is a bigger problem than cancer, heart, sickle cell, anemia, name it. It is - it's hitting 70 million Americans. ~ Jerry Lewis

I started bettysbattle.org, which is a charity in honor of my mom, associated with the Muscular Dystrophy Association, a charity that is near and dear to my heart. We turned to them for resources and information. They were there for us every step of the way, from the day that Mom was diagnosed. I formed a charity in honor of my mom and them. I'm the national ALS ambassador for MDA. I do their telethon every year. ~ Nancy O'Dell

Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors. ~ Mattie Stepanek

If it came to a magic genie, I would ask him for two extra wishes. One would be that no one would have to live with the muscular dystrophy disease or any disease. And the second one would be world peace, that we just stop fighting, talk about things, and we could live in harmony once again, like God intended us to do. ~ Mattie Stepanek

My cousin was diagnosed with muscular dystrophy, and it's just a really tragic disease, and as of yet there is no cure, so I feel I want to get it as much publicity to do it as I can. ~ Nick Robinson

There's already a lot of active research going on using the Crispr technology to fix diseases like Duchenne muscular dystrophy or cystic fibrosis or Huntington's disease. They're all diseases that have known genetic causes, and we now have the technology that can repair those mutations to provide, we hope, patients with a normal life. ~ Jennifer Doudna

A lot of times I say to myself, "I wished I could be worthy of all the compliments that people give me sometimes." I'm not inventing anything that's going to stop cancer or muscular dystrophy or anything, but I like to feel that my time and talent is always there for the people that need it. When someone do say something negative, most times I think about it, but it don't bother me that much. ~ B.B. King