Lyme Quotes

For myself, it took only the early discovery of a golden ammonite, glittering on the beach between Lyme and Charmouth, for me to succumb to the seductive thrill of finding unexpected treasure. ~ Tracy Chevalier

Interestingly, the definitive test for Lyme disease, called a western blot, was suggestive, but not absolutely diagnostic, for Lyme disease. That's how it is with most cases of "Lyme disease." I can't absolutely tell you today whether or not I was infected with Borrelia burgdorferi, the bacterium that causes Lyme. ~ William Rawls

For everything that's known about Lyme disease, there are still an extraordinary number of unknowns in some fairly fundamental areas. ~ Vanessa Farnsworth

Lyme disease is preventable, but only if Canadians have the information they need to prevent it. ~ Vanessa Farnsworth

The numbers matter: underreporting of Lyme disease obscures the true burden of the illnesses, on individuals as well as on health-care systems. It also makes it harder to convince Congress to fund research. ~ Michael Specter

Visitors to Lyme in the nineteenth century, if they did not quite have to undergo the ordeal facing travellers to the ancient Greek colonies -Charles did not actually have to deliver a Periclean oration plus comprehensive world news summary from the steps of the Town Hall- were certainly expected to allow themselves to be examined and spoken to. ~ John Fowles

Lyme is a word. Not a sentence. ~ Rebecca VanDeMark

If caught early, Lyme is easily treated with antibiotics. But activists, and many researchers, have long contended that tens of thousands of people remain unaware that they have been infected - sometimes for years, during which the bacterium can spread to the heart, nervous system, and brain. ~ Michael Specter

There once was an old man of Lyme who married three wives at a time when asked, 'Why a third?' he replied 'One's absurd! and bigamy, sir, is a crime!' ~ William Cosmo Monkhouse

If left untreated, Lyme disease can be crippling, yet it is a difficult illness to contract: a tick needs to attach itself to your body for at least twenty-four hours. Even then, two weeks worth of commonly prescribed antibiotics will kill the bacterium. ~ Michael Specter

I believe evidence is overwhelming that chronic Lyme is a terrible, overwhelming disease, and we need to find ways to treat this. To say otherwise is an inaccurate and unscientific opinion. ~ Chris Smith

This is usually accomplished by taking X-rays of the affected joints and analyzing blood for an ANA and rheumatoid factor (RF). Unfortunately, Lyme disease can cause false positive ANAs and rheumatoid factors due to a patient's overstimulated immune system. This can lead to a mistaken diagnosis of lupus or rheumatoid arthritis. This is why drawing a CCP (cyclic citrullinated peptide) is so important. It is a specific marker for rheumatoid arthritis and will help determine whether the patient has true rheumatoid arthritis or not. Patients with a positive ANA or RF often are prescribed immunosuppressive drugs, such as steroids or immunomodulatory drugs, like Enbrel or Arava. These treatments can have dire consequences for the Lyme disease patient who is co-infected, since they are already immune-suppressed, and steroids can cause their underlying infections and subsequent manifestations ~ Richard I. Horowitz

We had not meant our choice to cut us off from our past, but it did. We had only the present and the future to think of in Lyme. ~ Tracy Chevalier

I have late-stage Lyme disease. I was misdiagnosed for many, many years and told I had lupus, MS, Crohn's disease, even degenerative arthritis. And finally in 2010, I got the correct diagnosis, because on the last Le Tigre tour, I was having several seizures a day and at times not being able to brush my own teeth. ~ Kathleen Hanna

I am Mrs. Poulteney. I have come to take up residence. Kindly inform your Master."
"His Infinitude has been informed of your decease, ma'am. His angels have already sung a Jubilate in celebration of the event."
"That is most proper and kind of Him." And the worthy lady, pluming and swelling, made to sweep into the imposing white hall she saw beyond the butler's head. But the man did not move aside. Instead, he rather impertinently jangled some keys he chanced to have in his hand.
"My man! Make way. I am she. Mrs. Poulteney of Lyme Regis."
"Formerly of Lyme Regis, ma'am. And now of a much more tropical abode."
With that, the brutal flunkey slammed the door in her face. ~ John Fowles

This was the sort of situation that she read about in the novels she favored, by authors such as Miss Jane Austen, whom Margaret was sure she'd met long ago at the Assembly Rooms the first time we visited Lyme. One of Miss Austen's books had even featured Lyme Regis, but I did not read fiction and could not be persuaded to try it. Life itself was far messier and didn't end so tidily with the heroine making the right match. We Philpot sisters were the very embodiment of that frayed life. I did not need novels to remind me of what I had missed. ~ Tracy Chevalier

On this journey with our disease we may experience all of the emotions I listed and more, including feeling hopeless about the present and about the future, but our God f hope quietly and tenderly reminds us to hope even when everything feels hopeless. ~ Rebecca VanDeMark

The Centers for Disease Control and Prevention has established highly specific criteria for the diagnosis of Lyme disease: an acknowledged tick bite, the appearance of a bull's-eye rash, and, for those who don't live in a region where Lyme is common, laboratory evidence of infection. ~ Michael Specter

They explained that most Lyme patients' gall bladders cause major issues, because when they are not working properly, they act as a toxic magnet. ~ Andrea H. Caesar

You can't teach calculus to a chimpanzee. So just share your banana. ~ John Rachel

Everyone has a story. I see many clients suffering from chronic diseases such as Lyme disease, fibromyalgia, and generalized pain. Especially in these clients, I always look for the emotional component. And there is always an emotional component. Either there's a recent divorce, death in the family, trouble with a child or parent, or financial strife that's led to excessive stress. To reemphasize this point: you cannot heal if you don't heal your emotions. ~ Michelle S. Fondin

Lyme disease is the most commonly reported tick-borne illness in the United States, and the incidence is growing rapidly. In 2009, the C.D.C. reported thirty-eight thousand cases, three times more than in 1991. Most researchers agree that the true number of infections is five to ten times higher. ~ Michael Specter

I saw a video on YouTube of a girl who had very similar reactions to late-stage Lyme disease as I did. And I thought it was crazy. And when I saw her basically have a seizure on camera that looked very much like my seizure I felt, "Oh my god. That's me." And so it was really important to me, and I said to Sini, 'We have to find some way to not just talk about Lyme disease, but to show it. ~ Kathleen Hanna

It is no coincidence then that doctors and patients and the entire Lyme community report - anecdotally, of course, as there is still a frustrating scarcity of good data on anything Lyme-related - that women suffer the most from Lyme. They tend to advance into chronic and late-stage forms of the illness most because often it's checked for last, as doctors often treat them as psychiatric cases first. The nebulous symptoms plus the fracturing of articulacy and cognitive fog can cause any Lyme patient to simply appear mentally ill and mentally ill only. This is why we hear that young women - again, anecdotally - are dying of Lyme the fastest. This is also why we hear that chronic illness is a women's burden. Women simply aren't allowed to be physically sick until they are mentally sick, too, and then it is by some miracle or accident that the two can be separated for proper diagnosis. In the end, every Lyme patient has some psychiatric diagnosis, too, if anything because of the hell it takes getting to a diagnosis. ~ Porochista Khakpour

I know that I'm not the only one who struggles with feelings of self-pity. How many thousands of others are sidelined by the debilitating effects of Lyme disease? Multitudes hover on sofas and beds like me, too drained to do anything more than just the bare necessities of daily functioning. In fact, some can't even do that. Anyone living with chronic illness that imposes severe limitations must experience similar feelings of disappointment, frustration, fear, sadness, and envy. I am not alone. ~ Katina Makris

Our greatest hope does not rest in the death of suffering. Neither does our help lie in us having a full and perfect life, with no pain, no brokenness, and no Lyme disease. Instead our hope lies in God and we hope in the fact that this is our temporary home and our forever home with Him in Heaven is perfect. This hope- this beautiful and living hope (I Peter 1:3-4) is for the future but also gives us hope for our present days. ~ Rebecca VanDeMark

It's okay that I got sick, I suddenly realize. If Lyme hadn't taken me down so radically, I wouldn't have learned about stillness. I would not have discovered my enormous capacity to endure. I would have not have embraced this deeply contemplative place within my own being. ~ Katina Makris

I am not Lyme disease, that's not who I am, I'm still a feminist artist, but this is a part of my story too, and I'm not going to keep it out to look cooler. ~ Kathleen Hanna

Convincing biologic evidence exists for symptomatic chronic B. burgdorferi infection in patients after recommended treatment regimens for Lyme disease. ~ David Quammen

researchers like Dr. Eva Sapi have shown Lyme is like some other spirochetes - it has biofilms. These are very tough biofilms to defeat unless caught in the "acute stage." A tough, "mature biofilm" allows organisms to "laugh at" many antibiotics. Some medical professionals interested in Lyme often ignore the immune suppressing Bartonella bacterium, which is more common than Lyme. Ignoring coinfections may increase the risk of fatality with Babesia and possibly FL1953. These healers also may not realize that the highly genetically complex Lyme spirochete appears to have a troublesome biofilm. Performing a simple direct test at laboratory companies whose testing kits have reduced sensitivity will probably result in more negatives for tick-borne diseases. The ultimate result is anti-science and anti-truth. Searching for tick infections with one test is like writing in "Lincoln" at the next presidential election. ~ James L. Schaller