Chronic Pain Stigma Quotes

Despite what appears to be a low risk of addiction in naïve, chronic pain patients, it is reasonable to ask how much harm is actually done to patients with chronic pain by withholding opiate analgesics. ~ Howard L. Fields

A common misconception is that some people are only in pain because they are weak, anxious, depressed, or do not deal well with stress. This is not correct.
Every experience you have - touch, warmth, itch, pain - is created by the brain and thus is all in your head, but it does not mean they are not real.

Things like fear, anxiety, or depression can increase pain levels and can increase the chance of persistent pain. But often, these feelings only develop after a person already has chronic pain. ~ Tasha Stanton

Government agencies are trying to get doctors to cut back on prescribing opioids. I understand that they need to do something about the epidemic of overdoses. However, labeling everyone as addicts, including those who responsibly take opioids for chronic pain, is not the answer. If the proposed changes take effect, they would force physicians to neglect their patients. Moreover, legitimate pain patients, like myself, would be left in agony on a daily basis. ~ Alison Moore,

the media, at least in the U.S., tends to focus on pain pill use, abuse, and addiction by people who do not have chronic pain.
Even if these stories offhandedly mention that these pills are used to treat pain in people whose physical pain does not go away, however, the stories of those who use pain medicine responsibly -- or, worse, accused of drug-seeking behavior because they need certain types of pills for chronic pain -- are usually overshadowed by the "How can we prevent pain pill addiction?" concern, instead of asking, "How can we treat chronic pain more effectively? ~ Anna Hamilton

My doctors, who are not cavalier with prescriptions, give me this medication because I have earned their trust. And yet, with mounting government and public pressure, my doctors' hands are becoming increasingly tied. They apologetically explain to me why they are required to make the medication even harder for me to get, against their own medical judgment. If the day ever comes when they aren't allowed to prescribe Percocet to me at all, it may well be the end of the minimal quality of life I fight so hard to achieve. ~ Michael Bihovsky

There's a saying that goes something like: 'We are all one drink or pill away from addiction,' and I know this is meant to destigmatize what addicts go through, but I feel like I've been seeing variations on this 'common knowledge' more and more lately being used (on social media) as a cudgel to remind patients to not overdo it," Anna says, speaking to the dual-edged sword of awareness. A motto designed to humanize the experience of addiction has been turned into a weapon that targets people who rely on opioids for pain management, and that translates to real-world stigma. ~ S. E. Smith

Sometimes I wonder how I could have been so oblivious to the fact that proper treatment for pain is, well, not a bad thing. ~ Anna Hamilton

I will be living with chronic pain for the rest of my life. I don't have the mobility, energy or life options I used to have. I work hard to manage the pain, and I want the medical system to be a respectful and effective partner, not a jailer. The opioid crisis is not my doing. ~ Sonya Huber

Chronic pain patients like me are not the cause of the opioid crisis; only 22% of those who misuse opioids are prescribed them by a doctor, and only 13% of ER visits for opiate overdoses were chronic pain patients. Most chronic pain patients are rule-followers who just want to function. ~ Sonya Huber

I currently take Lortab, which is a combination of acetaminophen and hydrocodone. I'd rather not take this medication, or any medication for that matter, but it is the only one that controls my pain adequately enough to allow me to function on a daily basis... I take the smallest dose possible to enable me to remain as clear-headed as possible to do what I need to do each day...

Even with the minimal opioids I take, I still have pain all the time, 24 hours a day; without opioids, life would be torture. ~ Alison Moore

The stigma of chronic pain is one of the most difficult aspects of living with chronic pain. If you have chronic pain, people can sometimes judge you for it. Specifically, they can sometimes disapprovingly judge you for how you are coping with it. If you rest or nap because of the pain, they think you rest or nap too much. If they catch you crying, they become impatient and think you cry too much. If you don't work because of the pain, you face scrutiny over why you don't. If you go to your healthcare provider, they ask, "Are you going to the doctor again?" Maybe, they think that you take too many medications. In any of these ways, they disapprove of how you are coping with pain. These disapproving judgments are the stigma of living with chronic pain. ~ Murray J. McAlister

The proliferation of support groups suggests to me that too many Americans are growing up in homes that do not contain a grandmother. A home without a grandmother is like an egg without salt ... The emotionally satisfying discussions that take place in Chronic Pain Outreach and Depression Resources are simply updated versions of the grandmotherly practice of hanging crepe. We could eliminate much of the isolation that support groups exist to fill and save the "traditional family" that everybody is so worried about if more couples took their aging parents to live with them. ~ Florence King

God uses chronic pain and weakness, along with other afflictions, as his chisel for sculpting our lives. Felt weakness deepens dependence on Christ for strength each day. The weaker we feel, the harder we lean. And the harder we lean, the stronger we grow spiritually, even while our bodies waste away. To live with your 'thorn' uncomplainingly - that is, sweet, patient, and free in heart to love and help others, even though every day you feel weak - is true sanctification. It is true healing for the spirit. It is a supreme victory of grace. ~ J.I. Packer

So if somebody has chronic pain, we want to manage the pain, but we still want to treat the insomnia separately. So what we'll tend to do in our sleep lab is we'll do a thorough evaluation and we usually have myself, who is a Psychologist and a Sleep Behavioral Sleep Specialist, I treat the patients first. ~ Shelby Harris

Personalized medicine is an art that advocates for the patient, not the pocket or convenience of the medical system. ~ Melissa Cady

The strong, ferocious wind just made the chill worse, and as it blew around me, electric bursts of pain shot through my body. ~ Jennifer Starzec

Looking at mental health problems the same way we look at other medical problems is factually correct - the best bet for reducing the disabling symptoms and the only way to lessen the stigma and blame that traditionally double or triple the pain. ~ Mark Vonnegut

Healing severe or chronic pain, I believe, includes transforming our relationship to the pain, and, ultimately, it is about transforming our relationship to who we are and to life. ~ Sarah Anne Shockley

Being stigmatied by sex is being marked by its meaning in a human life of loneliness and imperfection, where some pain is indelible. ~ Andrea Dworkin

One of the most popular genital surgeries is labia minora reduction. When a similar procedure is performed on healthy girls in some African countries as a coming-of-age rite to control their sexuality, Westerners denounce it as genital mutilation; in the U.S. of A., it's called cosmetic enhancement. But both procedures are based on misogynist notions of female genitalia as ugly, dirty, and shameful. And though American procedures are generally performed under vastly better conditions (with the benefit of, say, anesthesia and antibiotics), the postsurgical results can be similarly horrific, involving loss of sensation, chronic pain, and infection. ~ Julia Scheeres

Nothing worked. This blazing pain seemed only to be getting worse. ~ Jennifer Starzec

Having a chronic illness, Molly thought, was like being invaded. Her grandmother back in Michigan used to tell about the day one of their cows got loose and wandered into the parlor, and the awful time they had getting her out. That was exactly what Molly's arthritis was like: as if some big old cow had got into her house and wouldn't go away. It just sat there, taking up space in her life and making everything more difficult, mooing loudly from time to time and making cow pies, and all she could do really was edge around it and put up with it.

When other people first became aware of the cow, they expressed concern and anxiety. They suggested strategies for getting the animal out of Molly's parlor: remedies and doctors and procedures, some mainstream and some New Age. They related anecdotes of friends who had removed their own cows in one way or another. But after a while they had exhausted their suggestions. Then they usually began to pretend that the cow wasn't there, and they preferred for Molly to go along with the pretense. ~ Alison Lurie

Somewhere inside that hurting body, there is something better, something stronger, something real. ~ R. M. Drake

So, more times than not, but not every time, it can be linked to a medical problem, such as menopause, cancer, chronic pain, it can be linked to anxiety and depression. Those are the more common causes. ~ Shelby Harris

Surrender is an incredibly difficult topic in light of chronic illness, because loss is often continued and sustained. ~ Cindee Snider Re

There is no great reward for being emotionally withdrawn, no pity prize for bottling your frustration. No one is coming to congratulate your chronic self-repression. By opening up, maybe you will inconvenience some people. Maybe you will trigger some conflict. Maybe you will be rejected, criticized, judged. Everything comes with a price and everything has its compensation. Authenticity may require pain, but it also opens the doors to joy, creativity, self-respect, empathy. Self-repression, on the other hand, costs you all the beauty of the world in exchange for a prison of comfort. Is it really worth it? Isn't it time to break free? ~ Vironika Tugaleva

I suffer from chronic nostalgia. Looking back makes me dizzy, queasy, and I yearn for it, ache for it. I want it back; maybe the homesickness will leave then.

But it's not the way I remember it. I long for a past that I didn't have, for the same experiences with different emotions, without the pain, without the ambivalence, without the fear. My heart remembers two different lives and I long for the one I can only see now, in retrospect. ~ Jacqueline Simon Gunn

Chronic illness is hard. Pain is hard. Isolation is hard. The financial cost is hard. Grieving is hard and necessary and sometimes takes far longer than we every imagined. ~ Cindee Snider Re

Sometimes ... we find that even when we do our best to serve the Lord, we still suffer. You may know someone who faces these most challenging of circumstances: consider the parent whose child becomes ill, for whom everyone prays and fasts with all their heart and soul, but who ultimately dies. Or the missionary who sacrifices to go on a mission, then develops a terrible illness that leaves him or her severely disabled or in chronic pain. ~ David E. Sorensen

If I were somebody dealing with chronic pain, I would see it as a challenge to manage my mind; even knowing that the effect of my thoughts is not only affecting my experience, but it is absolutely affecting the state of my health. ~ Cheryl Richardson

I think anyone who suffers from chronic pain can agree with this - you feel this great significance. What I wanted to capture was that significance, and as a matter of fact I think that's one of the lyrics on 'Conflict,' on the split. I touch on the significance, and really it's a selfish thing, in an offbeat way. ~ Phil Anselmo

He awoke each morning with familiar shapes at the edges of his vision, could feel memories nearby, but by the time breakfast came, they were already fading. By dinner, they were lost. It left Troy with a sadness, a cold sensation, and a feeling like a hollow stomach
different from hunger
like rainy days as a child when he didn't know how to fill his time. It was the pain of a chronic boredom mixed with the discomfort of time wasted. ~ Hugh Howey

Chronic illness, with its invisible symptoms of fatigue and pain, is largely the burden of women. And it's worth considering to what extent its relative neglect by the medical system is because it mostly affects women, whose complaints are so often heard not as a roar but as a whine. ~ Maya Dusenbery

LOIS: The personal stuff you've been dealing with, did you feel like you needed someone to catch you? Were we not there for you?

DIANA: (pauses) You know how when people talk of depression, they talk of it both coming in storms and coming stealthily? So that, for many, it is the status quo, before they realize... that we lose our self-awareness in that. So I can't... I can't fault the people who love and care for me for not seeing what I did not myself see.

I think, again, when we have our moments of clarity, it is very easy to brush past them, to let the status quo continue. It can be very difficult and sometimes painful to turn and confront them. The only analogy I can think of is chronic pain. When that pain has been with you for so very long, it is background noise. And one is not aware of it until something happens that places it into relief.

LOIS: But you're not talking about physical pain?

DIANA: No. And I am not certain I am talking about emotional pain either. It has been difficult for me to untangle. I think there is a psychological element to it. I think it is important--and I think as a reporter that you would be inclined to agree--that we question those basic assumptions that we often decide are true.

I have found myself in a position where a great deal of what I took as true no longer seems accurate.

That may be because I have changed. That may be because the world has changed. Or it may be becaus ~ Greg Rucka

Mild depression is a gradual and sometimes permanent thing that undermines people the way rust weakens iron. It is too much grief at too slight a cause, pain that takes over from the other emotions and crowds them out. Such depression takes up bodily occupancy in the eyelids and in the muscles that keep the spine erect. It hurts your heart and lungs, making the contraction of involuntary muscles harder than it needs to be. Like physical pain that becomes chronic, it is miserable not so much because it is intolerable in the moment as because it is intolerable to have known it in the moments gone and to look forward only to knowing it in the moments to come. The present tense of mild depression envisages no alleviation because it feels like knowledge. ~ Andrew Solomon

The trouble with chronic pain is that it is so easy to become accustomed to it, both mentally and physically. At first it's absolutely agonizing; it's the only thing you think about, like a rock in your shoe that rubs your foot raw with every step. Then the constant rubbing, the pain and the limp all become part of the status quo, the occasional stabbing pain just a reminder.
You are so set to endure, hunched against it - and when it starts to ease, you don't really notice, until the absence washes over you like a balm. ~ Robert J. Wiersema

Even if the body's inflammatory response is a necessary part of its physiology to heal wounds, fight infection, and rebuild the muscles. However, too much inflammation leads to a number of conditions such as Alzheimer's disease, atherosclerosis, arthritis, autonomous disorders, cancer, chronic pain, eczema, premature aging, and yeast infection. Sugar is an inflammatory food and having too much sugar in the body exposes it to a continuously inflamed state. Sugar detox helps prevent the foretasted conditions which put sugar addicts at a higher risk of contracting these conditions. ~ Samantha Michaels

If you get operated, something can go wrong and you can just say bye-bye to tennis. That's what happened to a lot of soccer players in Europe. They get operated, some things, it's not the mistake of the doctor. It's just some surgeries, they just don't go the right way ... My injury will never go away. It's already become so chronic there's no chance to fix it so I can play without pain. ~ Marat Safin

I have lived most my life with chronic inflammation and constant pain with immediate diarrhea. ~ Mike McCready

I'm tired of things I love being gone forever. I didn't think there was room in me for any more holes, but that's all I am now, a collection of empty spaces where things were ripped away. ~ Laura Tims

Harm reduction is often perceived as being inimical to the ultimate purpose of "curing" addiction - that is, of helping addicts transcend their habits and to heal. People regard it as "coddling" addicts, as enabling them to continue their destructive ways. It's also considered to be the opposite of abstinence, which many regard as the only legitimate goal of addiction treatment. Such a distinction is artificial. The issue in medical practice is always how best to help a patient. If a cure is possible and probable without doing greater harm, then cure is the objective. When it isn't - and in most chronic medical conditions cure is not the expected outcome - the physician's role is to help the patient with the symptoms and to reduce the harm done by the disease process.

In rheumatoid arthritis, for example, one aims to prevent joint inflammation and bone destruction and, in all events, to reduce pain. In incurable cancers we aim to prolong life, if that can be achieved without a loss of life quality, and also to control symptoms. In other words, harm reduction means making the lives of afflicted human beings more bearable, more worth living. That is also the goal of harm reduction in the context of addiction. Although hardcore drug addiction is much more than a disease, the harm reduction model is essential to its treatment. Given our lack of a systematic, evidencebased approach to addiction, in many cases it's futile to dream of a cure.

So long as s ~ Gabor Mate

In the car inching its way down Fifth Avenue, toward Bergdorf Goodman and this glamorous party, I looked back on my past with a new understanding. This sickness, the "endo-whatever," had stained so much - my sense of self, my womanhood, my marriage, my ability to be present. I had effectively missed one week of each month every year of my life since I was thirteen, because of the chronic pain and hormonal fluctuations I suffered during my period. I had lain in bed, with heating pads and hot-water bottles, using acupuncture, drinking teas, taking various pain medications and suffering the collateral effects of them. I thought of all the many tests I missed in various classes throughout my education, the school dances, the jobs I knew I couldn't take as a model, because of the bleeding and bloating as well as the pain (especially the bathing suit and lingerie shoots, which paid the most). How many family occasions was I absent from? How many second or third dates did I not go on? How many times had I not been able to be there for others or for myself? How many of my reactions to stress or emotional strife had been colored through the lens of chronic pain? My sense of self was defined by this handicap. The impediment of expected pain would shackle my days and any plans I made.

I did not see my own womanhood as something positive or to be celebrated, but as a curse that I had to constantly make room for and muddle through. Like the scar on my arm, my reproductive syst ~ Padma Lakshmi

I wondered if there was anything [the doctor] could do to to make the pain disappear and my arms work again. I wondered if I was going to get any worse than I already was. If so, I wondered if he could fix that, too. ~ Jennifer Starzec

Everyone has a story. I see many clients suffering from chronic diseases such as Lyme disease, fibromyalgia, and generalized pain. Especially in these clients, I always look for the emotional component. And there is always an emotional component. Either there's a recent divorce, death in the family, trouble with a child or parent, or financial strife that's led to excessive stress. To reemphasize this point: you cannot heal if you don't heal your emotions. ~ Michelle S. Fondin

I have tremendous empathy for people who are faced with any kind of a chronic problem. Sometimes when we're in this situation, it's as though our mind has us believe that if we ruminate about the pain we'll find a way out. ~ Cheryl Richardson

People who don't see you every day have a hard time understanding how on some days--good days--you can run three miles, but can barely walk across the parking lot on other days,' [my mom] said quietly. ~ Jennifer Starzec

I take opioids to treat chronic pain. Stigmatizing them will harm me. ~ Sonya Huber

As he analyzed the areas that fire in chronic pain, he observed that many of those areas also process thoughts, sensations, images, memories, movements, emotions, and beliefs - when they are not processing pain. That observation explained why, when we are in pain, we can't concentrate or think well; why we have sensory problems and often can't tolerate certain sounds or light; why we can't move more gracefully; and why we can't control our emotions very well and become irritable and have emotional outbursts. The areas that regulate these activities have been hijacked to process the pain signal. ~ Norman Doidge

In my work on injuries, I'm very interested in the lag time between when a person first suspects that something is too intense or painful for them in practice, and when they actually stop or alter practice. In between those two points comes a litany of things they are told and learn to tell themselves - "pain is an opening", "practice requires commitment" etc. - about the necessity of continuing. It's also in this period that repetitive strain can evolve into chronic injury. ~ Anonymous

Chronic pain shatters productive lives. Chronic pain almost always is accompanied by depression, anxiety, frustration, fatigue, isolation, and lowered self-esteem. ~ Jed Diamond

Princess, you have decided to follow the hard path. I cannot promise you the life a royal princess deserves,' he began slowly. 'I am a wandered myself, stuck in an eternal search. I am a vagabond who doesn't know where I am going. My past beckons my present, but I can see only a blurred future. All my life, I have been slighted as a person of low birth- and the stigma will rub off on you as well. Yet, I am not ashamed of who I am ... ~ Kavita Kane

Pain is always emotional. Fear and depression keep constant company with chronic hurting. ~ Siri Hustvedt

I started feeling afraid of my own body, like it was a torture chamber I'd been trapped inside. ~ Talia Hibbert

It's burning, but it's not burning me up. I'm feeling it, but it's not killing me. I think about how powerful it is, and how strong that must mean that I am. ~ Laura Tims

In his books, Dr. Alexander Lowen put into words the anguish I could not describe. He explained how a repressed experience was converted into a physical symptom. Intense sexual energy that had not been resolved or discharged would be forced into muscles, causing chronic muscular tensions. Finally, someone understood my pain…at least that one. Chronic muscular tension may not sound like a big deal but I have lived in a body primed for lifting a car. The muscles never let go. Even when I awaken, they are flexed to the max. It's called "muscular armoring. ~ Marilyn Van Derbur

Psychologisation describes the emphasis on psychological factors where there is little or no evidence to justify it (1). It's a process where relevant findings are ignored or downplayed in favour of data from incomplete examinations, flawed research or anecdotal reports.
In a clinical context, differential diagnoses may be dismissed prematurely while psychological explanations are readily accepted.
Psychologisation does not refer to situations where there is sound evidence that psychological factors play a significant role, or where all the arguments are discussed and the psychological explanations are deemed the most persuasive. ~ Ellen Goudsmit

There are millions of Americans who are suffering from chronic pain. ~ Jennifer Grey

No doubt about it, allopathic medicine (the term used to describe conventional Western medicine) is superb at dealing with trauma and bacterial infections, but it is not nearly as effective as natural medicine at managing chronic pain, autoimmune disease, and degenerative conditions. ~ Marcellus A. Walker